Clinical Care
The UT CF Care and Research Center at Le Bonheur Children's Hospital/Methodist University Hospital strives to provide outstanding care to adult and pediatric patients with CF from West Tennessee, eastern Arkansas, and northern Mississippi. Our major strength is our very experienced CF care team that has worked together for many years, along with the outstanding support of the administration of Le Bonheur Children's Hospital and of the Department of Pediatrics of the University of Tennessee. Our center is a CF Foundation Therapeutic Development Network (TDN) Center and we are actively involved in bringing new CF therapies to CF patients for clinical trials, with a dedicated CF research nurse coordinator. Our multidisciplinary CF team includes nursing, nutrition, respiratory therapy (RT), physical therapy (PT), social work, pharmacist, child life, and palliative care, all working together in a collaborative way.
In addition, the center team works closely with the CF Patient and Parent Advisory Council (PPAC). The PPAC and CF Center plan a yearly to twice yearly Family Education Day and a yearly CF team retreat focused on improving care. The Adult CF Care Program is centered at Methodist University Hospital (LINK) and includes monthly clinics and a dedicated adult CF care team including pulmonologists, RT, nursing, nutritionist, and social work.
The Le Bonheur Pediatric & Adolescent Sleep Disorders Center was established in 1994 to help newborns, children, and teens get the sleep they need. We provide clinical services to children to are referred to any one of the several specialists that are members of our multi-disciplinary team. All of the specialists and technicians who work with our center are committed to pediatric patients, and bring a kid-friendly and family-centered approach to evaluating and managing sleep problems. Robert A. Schoumacher, MD is a board-certified specialist in sleep medicine and serves as the medical director. He works with many of the Pediatric Neurologists, Pediatric Otolaryngologists and Pediatric Pulmonologists in Memphis to provide the appropriate level of evaluation and service to each patient. He also has his own clinic for children with sleep disorders every Tuesday.
Pediatric specialists in Neurology, Otolaryngology and Pulmonology that register as consultants with our sleep center get support and education on the latest information about sleep disorders in Children. They have access to all of the services of the center, including Polysomnography, Actigraphy, Multiple Sleep Latency Testing and Maintenance of Wakefulness Testing. The history and physical information they collect helps to inform Dr. Schoumacher’s interpretations of any studies performed at the center. Reports are made to those specialists to share with the patients and families, and copies are provided to the primary care physicians.
The center performs over 800 studies per year, and the Sleep Clinic follows a large number of patients with Obstructive Sleep Apnea, Snoring, Circadian Rhythm Disorders, Narcolepsy and Insomnia. The center has a large group of patients using CPAP and BiPAP to manage Obstructive Sleep Apnea, and assists the Pulmonologists who are managing various diseases with respiratory assistance by BiPAP or invasive mechanical ventilation.
A current goal of the center is to establish a Sleep Medicine Fellowship, coordinated with the Sleep Medicine Program for adults at the Veterans Administration Medical Center, to help train the next generation of Sleep specialists to serve our patients.
The Division of Pediatric Pulmonary Medicine cares for a number of children who are dependent on various degrees of advanced technology for their health. This includes a large number of children using oxygen supplementation for chronic lung disease, CPAP or BiPAP for Obstructive Sleep Apnea, or with chronic tracheostomy and/or gastrostomy placement. These children are typically seen as consultation cases whenever they are hospitalized at Le Bonheur, and followed on a regular basis as outpatients in the Pediatric Pulmonology Clinics.
The one special clinic is our Apnea Monitor Clinic, held at least monthly, to help manage the children who have been discharged from any area hospital with a home apnea monitor. With appropriate evaluation and care, most of these children can be successfully and safely weaned from these devices within a few visits.
The most complicated patients, with invasive mechanical ventilation, are followed in our regular Pediatric Pulmonology Clinics. We provide some extra services to these patients, including a review by a Respiratory Therapist at every clinic visit, measurement of resting oxygen saturation level and end-tidal capnometry, and special nursing and nutritional evaluation as needed. Ventilator settings or weaning protocols can be adjusted in the Clinic, with additional oxygen saturation and capnometry testing as required. Most of our ventilator-dependent patients are associated with a single Pulmonologist, and will have most or all of their Clinic appointments with that physician.
Le Bonheur Children's Hospital has a well-establish training program for Technology Dependent Children, which is strongly supported by our Critical Care Division and the Pulmonology Division. Nurse Practitioners are provided by Le Bonheur to help the resident physician staff and attending physician staff provide this complex care and make all of the necessary arrangements for eventual home placement. Experienced Respiratory Therapists assist the dedicated nursing staff in training the families in all the necessary skills, and documenting the mastery achieved by the family prior to discharge. The Pulmonology Division is closely involved in this long process, rounding on every patient in the Transitional Care Unit at least weekly , with a focus on their long-term care needs, their pathophysiology and their long-term management/weaning plans.