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Participant Resources

Research Participant Information The government's Clinical Trials site provides patients, family members, and members of the public easy and free access to information on clinical studies for a wide range of diseases and conditions.

Clinical Trials and Insurance Coverage from NCI: This site is a resource guide to help you understand the critical issue of how to cover the costs of care.

Department of Health & Human Services About Research Participation: This DHHS site has videos and other resources about participating in research studies.

Department of Health & Human Services Pamphlet:

National Cancer Institute: This site provides a list of NCI's clinical trials.

National Institutes of Health (NIH) Clinical Trials Website: Search the collection of research studies that are being conducted at the NIH Clinical Center.

The NIH, National Heart Lung and Blood Institute website provides a link on their homepage to information about children in clinical studies.

Participating in Clinical Trials: This FDA site provides information and links about participating in research studies.

The Center for Information & Study on Clinical Research Participation (CISCRP): This nonprofit organization is dedicated to educating the public, research community, media, and policy makers about clinical research participation and the role that each of them play.

Informed Consent Process

Informed Consent: The National Cancer Institute explains informed consent and the consent process.

Children's Assent to Clinical Trial Participation: The National Cancer Institute explains assent, a child's agreement to participate in a clinical trial, and the assent process.

General Health Information

Genetics Home Reference: This site of the National Library of Medicine is a consumer-friendly guide to understanding genetic conditions and the effects of genetic variations on human health.

Glossary of medical terms: This is a list of terms you may hear during your conversations with the researchers about participating in a research study.

NIH Health Information: This website links you to information about specific diseases and conditions.

MedlinePlus: This site brings together authoritative information from the National Library of Medicine, the National Institutes of Health (NIH), and other government agencies and health-related organizations to help answer health questions.

May 26, 2022