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Patient Support Groups

The Kaplan-Amonette Department of Dermatology and University of Tennessee make no recommendation or endorsement of organizations listed. This list is provided solely as a public service and is not meant to be all-inclusive. Individuals must determine for themselves how to use the information provided. When making medical decisions, a physician should always be consulted.

Albinism
The National Organization for Albinism and Hypopigmentation
P.O. Box 959
East Hampstead, NH 03826-0959
Phone: (800) 473-2310 (US and Canada)
Phone: (603) 887-2310
Fax: (800) 648-2310
Email: webmaster@albinism.org
Alopecia Areata
National Alopecia Areata Foundation (NAAF)
14 Mitchell Boulevard
San Rafael, CA 94903
Phone: (415) 472-3780
Fax: (415) 472-5343
Email: info@naaf.org
Cutaneous T-cell Lymphoma
Cutaneous Lymphoma Foundation
P.O. Box 374
Birmingham, MI 48012-0374
Phone: (248) 644-9014
Fax: (248) 644-9014
Contact Information
Eczema
National Eczema Association
4460 Redwood Hwy., Ste. 16-D
San Rafael, CA 94903-1953
Phone: (415) 499-3474/(800) 818-7546
Fax: (415) 472-5345
Email: info@nationaleczema.org
Epidermolysis Bullosa (EB)

DEBRA International
Am Heumarkt 27/1
1030 Vienna
Austria
Phone: + 43 (0)1 876 40 30
Contact

Ichthyosis
Foundation for Ichthyosis and Related Skin Types
1364 Welsh Road G2
North Wales, PA 19454
Phone: (215) 619-0670
Fax: (215) 619-0780
Email: info@scalyskin.org
Lupus Erythematosus

Lupus Foundation of America, Inc.
National Office:
2000 L Street, N.W., Suite 710
Washington, DC 20036
Phone: (202) 349-1155
(8:30 a.m. - 5 p.m. EST, Monday - Friday)
Fax: (202) 349-1156
(800) 558-0121 (Information request line)
(800) 558-0231 (Para informacion en Espanol)

 

Melanoma

American Melanoma Foundation
12395 El Camino Real, Suite 117
San Diego, CA 92130
Phone: (858) 882-7712

The Melanoma Research Foundation
170 Township Line Road,Bldg B
Hillsborough, NJ 08844
Phone: (800) MRF-1290
Fax: (908) 281-0937

Mycosis Fungoides
Cutaneous Lymphoma Foundation
PO Box 374
Birmingham, MI 48012-0374
Phone: (248) 644-9014
Fax: (248) 644-9014
Contact Information
Porphyria
The American Porphyria Foundation
4900 Woodway, Suite 780
Houston, TX 77056-1837
Phone: (713) 266-9617
Toll Free: (866) APF-3635
Fax: (713) 840-9552
Pemphigus and Pemphigoid
International Pemphigus & Pemphigoid Foundation
1540 River Park Drive, Suite 208
Sacramento CA 95815
Phone: (916) 922-1298
Fax: (916) 922-1458
Psoriasis
National Psoriasis Foundation
6600 SW 92nd Ave., Suite 300
Portland, OR 97223-7195
Phone: (503) 244-7404
(800) 723-9166
Fax: (503) 245-0626
Email: getinfo@psoriasis.org
Rare Disorders
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100
Tollfree: (800) 999-6673 (voicemail only)
TDD Number: (203) 797-9590
Fax: (203) 798-2291
Email: orphan@rarediseases.org

 

Last Published: Jun 2, 2017